Focused Issue on The Road to Personal Medicine

Posted On 2019-06-25 14:12:37


This focused issue on “The Road to Personal Medicine” is edited by Dr. Peter Kapitein, CEO & Patient Advocate, Inspire2Live, Amsterdam, the Netherlands.

Dr. Peter Kapitein is a patient advocate and one of the founders of Inspire2Live. He connects patients, researchers and clinicians to further research, treatments and care; in the Netherlands as well as international. He organizes congresses, lobbies the matrix of public authorities, health care organizations, insurance companies and health research institutes. He also gives lectures and talks to help patients and society to fight cancer where possible and live with cancer with a good quality of life. He is a writer of blogs, articles and books that also contributes to these topics.

    Focused issue outline:
  1. Preface to this focused issue
    Peter Kapitein, CEO & Patient Advocate, Inspire2Live, Amsterdam, the Netherlands
  2. People change through adaptation and because of urgency
    Peter Kapitein, Inspire2Live, Amsterdam, the Netherland
  3. Access to the medicine market – we could do better!
    Peter Kapitein, Inspire2Live, Amsterdam, the Netherland
  4. How to identify the individual treatment for a pancreatic cancer patient?
    Andrew Biankin, University of Glasgow, Glasgow, UK
  5. What’s the need for decision making with patients when the research agenda is being setup?
    Natacha Bolaños, Regional Coordinator Europe/Lymphoma Coalition, Madrid Area, Spain
  6. Why is hematology decades ahead of oncology in precision medicine?
    John Gribben, Barts Cancer Institute, Queen Mary University of London, London, UK
  7. How can we use data to profile a patient?
    Ernst Hafen, Institute of Molecular Systems Biology, ETH Zürich, Zürich, Switzerland
  8. How can we individualize screening to prevent overtreatment
    Denis Horgan, European Alliance for Personalised Medicine, Brussels, Belgium
  9. It’s all about diagnostics, stupid!
    Piarella Peralta, Inspire2Live, Amsterdam, the Netherland
  10. Precision medicine and the ethics
    Jessica Flanigan, University of Richmond, Leadership Studies and PPEL, Richmond, VA, USA
  11. Real world precision medicine in rare cancers: examples and ideas
    Bass Hassan, Tumour Growth Control Group, Oxford Molecular Pathology Institute, Sir William Dunn School of Pathology, University of Oxford, Oxford, UK
  12. Precision medicine and trials
    Ulrich Jaeger, Medical University of Vienna, Innsbruck, Austria
  13. Precision medicine and the legal aspects
    David Townend, Department of Health, Ethics and Society, and CAPHRI (Care and Public Health Research Institute), Maastricht University, Maastricht, The Netherlands